On a very rainy, misty, foggy morning this week, I made my way to Albany to have my six-month Doppler scan and consultation with Dr. Mehta. The scan showed a bit of slowing of the blood flow in the right internal jugular vein, and there was a bit of positional reduction of blood flow, too. The kind doctor, who must realize how my mind works by now, declined to tell me which vein or which position was compromised in this second issue. He believes that it might be an abnormal normality (or is it a normal abnormality?) for many people, so why bother with information that might lead me to hold my head a certain way (oh, and I would) or cause me to fret continuously (and I really would!)? I like that he used himself as an example—that he, if scanned, could possibly have this same glitch in his neck veins. Why that makes me feel better, I don’t know; but it does!
The plan now is not to return until November unless I have a change in symptoms. This little direction spurred a whole conversation, since the symptomology of CCSVI is what? To me, CCSVI is only relative to the symptoms of my so-called multiple sclerosis. It hangs like a hat on the peg of my MS! Maybe the two concerns will show themselves separately and I will be able to look back over my health history and see the distinction. Or see how the MS label was given to me without a further check of the vascular issues I had prior to the EEGs, spinal tap and MRIs. As the medical community debates and researchers struggle with the correlation of the two disease entities (perhaps more, given the breadth of MS types), it all comes down to THIS: There is an ongoing battle to feel better and improve the quality of life, day-by-day.
How do YOU fight the battle?